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New insights into the experience of fatigue among patients with rheumatoid arthritis: A qualitative study
Annals of Rheumatic Diseases, 11/10/09

Nikolaus S et al. – Results point to the existence of differences in fatigue experience according to gender, age, and daily roles. This finding indicates a need for targeting advice and interventions to the individual situation of a patient. Furthermore, the positive aspects patients reported about their fatigue could facilitate an approach that is focused on remaining opportunities and not only on restrictions.

• Participants were 31 RA outpatients of Medical Spectrum Twente, with all levels of fatigue
• In-depth structured interviews on patients’ experience of fatigue were conducted and analyzed using bottom-up coding scheme, meaning that answers of patients were summarized and categorized

• Patients’ mean fatigue severity score 50 (VAS; theoretical range 0-100)
• Interviews showed inter-individual differences in experience and impact of fatigue
• Different patterns in emotions, consequences and management of fatigue found
• Younger women with multiple daily roles more vulnerable to negative impact of RA fatigue
• Patients also reported positive aspects of fatigue
• Varying forms of fatigue described

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