Rheumatology Medical News about JIA, Internet, DISCERN

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Surfing for juvenile idiopathic arthritis: Perspectives on quality and content of information on the internet
Journal of Rheumatology, 08/13/09

Stinson JN et al. – This study highlights the paucity of high quality Internet health information at an appropriate reading level for youth with juvenile idiopathic arthritis (JIA) and their parents.

Methods

Aim was to determine the quality and content of English language Internet information about JIA from the perspectives of consumers and healthcare professionals
Key words relevant to JIA were searched across 10 search engines
Quality of information was appraised independently by 2 health professionals, 1 young adult with JIA, and a parent using the DISCERN tool
Concordance of the website content with available evidence about management of JIA was determined
Readability was determined using Flesch-Kincaid grade level and Reading Ease Score

Results

Out of the 3000 Web pages accessed, only 58 unique sites met the inclusion criteria
Of these sites only 16 had DISCERN scores above 50%
These sites were then rated by consumers
Most sites targeted parents and none were specifically developed for youth with JIA
Overall quality of website information was fair, with a mean DISCERN quality rating score of 48.92 out of 75
Overall completeness of sites was 9.07 out of 16 and accuracy 3.09 out of 4 indicating a moderate level of accuracy
Average Flesch-Kincaid grade level and Reading Ease Score were 11.48 and 36.36 respectively, indicating that the material was difficult to read

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