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Is parental coping associated with quality of life in juvenile idiopathic arthritis?
Pediatric Rheumatology, 03/16/09
Cavallo S et al - These findings underscore the importance of helping parents of children with juvenile idiopathic arthritis (JIA) better understand their child's medical situation.
Methods- Aims of this study were: (i) to describe coping in a cohort of parents of children with JIA; and (ii) to determine whether QoL is associated with parental coping
- Whether socio-demographic factors such as child's age, family socioeconomic status and family structure are associated with parental coping was also determined
- 182 parents caring for a child with JIA completed a postal survey x3/yr
- Association between the child's QoL and parental coping was analyzed
- Children experienced difficulty in completing specified activities at most just below 25% of the time and results fall off slightly following the 6 mo time point
- Understanding the Medical Situation was deemed most useful
- The child's QoL was associated with parental coping
- Parents of children with greater psychosocial dysfunction used more coping behaviours related to Understanding the Medical Situation
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