Rheumatology Medical News about systemic sclerosis;skin self-assessment

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Establishment and partial validation of a patient skin self-assessment questionnaire in systemic sclerosis
Rheumatology, 02/23/09

Nagy Z et al. – Study validates the skin thickness domain of the questionnaire developed for SSc pts to provide information about their skin. Patient-reported and examiner-measured tethering, as well as skin thinness domain merits further investigation.

Methods

Aim was to construct a patient self-assessment questionnaire testing whether pts can provide valid information about their skin thickness, tethering and thinness
Questions about the 17 body areas identical to those investigated in the Modified Rodnan Skin Score (MRSS)
Baseline and 1 yr f/u values of thickening, tethering and thinning were scored on a scale of 0–3, by 131 consecutive pts

Results

Questionnaire was feasible; test–retest reliability was good
MRSS correlated with 17-area thickness score
Both the patient-reported thickness and tethering scores and the expert-measured MRSS and tethering scores correlated highly with each other
Patient-reported thinness scores did not show any correlation with the examiner-measured skin thickening/tethering
All thickness-related scores were sorted into the same factor by principal component analysis
Conversely, skin thinness scores were sorted into a distinct factor
Skin thickness scores reported by diffuse SSc pts were different from those of limited SSc cases

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