Finding out what matters: validity of quality of life measurement in young people with ASD

Child: Care, Health, and Development, 05/04/2012

These results indicate that a new condition–specific measure of QoL, grounded in Autism Spectrum Disorder (ASD) children's own perspectives of their lives, is needed and that such a measure should assess experiences of anxiety and access to special interests when measuring QoL of children with ASD. Active involvement of young people and their families is critical for the development of a theoretical framework for QoL within ASD, and any future development of an ASD–specific measure.

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