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Evaluation of a national resource to identify and study rare diseases: The Australian Paediatric Surveillance Unit
Journal of Paediatrics and Child Health, 08/27/09
He S et al. – The APSU fulfils its objectives and meets relevant CDC criteria for usefulness, simplicity, acceptability and representativeness, sensitivity and timeliness of data quality. However, stability is threatened by lack of continuing core funding. APSU is highly productive and valued by child health clinicians, researchers and public health professionals.
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