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Surfing for juvenile idiopathic arthritis: Perspectives on quality and content of information on the internet
Journal of Rheumatology, 08/13/09
Stinson JN et al. – This study highlights the paucity of high quality Internet health information at an appropriate reading level for youth with juvenile idiopathic arthritis (JIA) and their parents.
Methods- Aim was to determine the quality and content of English language Internet information about JIA from the perspectives of consumers and healthcare professionals
- Key words relevant to JIA were searched across 10 search engines
- Quality of information was appraised independently by 2 health professionals, 1 young adult with JIA, and a parent using the DISCERN tool
- Concordance of the website content with available evidence about management of JIA was determined
- Readability was determined using Flesch-Kincaid grade level and Reading Ease Score
- Out of the 3000 Web pages accessed, only 58 unique sites met the inclusion criteria
- Of these sites only 16 had DISCERN scores above 50%
- These sites were then rated by consumers
- Most sites targeted parents and none were specifically developed for youth with JIA
- Overall quality of website information was fair, with a mean DISCERN quality rating score of 48.92 out of 75
- Overall completeness of sites was 9.07 out of 16 and accuracy 3.09 out of 4 indicating a moderate level of accuracy
- Average Flesch-Kincaid grade level and Reading Ease Score were 11.48 and 36.36 respectively, indicating that the material was difficult to read
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