Building a Legacy for Children and Adolescents With Chronic Disease
Journal of Pediatric Nursing, 05/31/2012
Sisk C et al. – Children and adolescents who undergo extensive health–related treatment benefit from sharing their experience. Here, they describe how one institution established a legacy program for patients during their chronic disease treatment and how their journeys were symbolized with the distribution of beads. The legacy bead program was designed to be individualized according to the patient's journey and treatment experiences.