The natural history and predictors of persistent problem behaviours in cystic fibrosis: a multicentre, prospective study
Archives of Diseases in Childhood, 05/23/2012
Sheehan J et al. – Child problem behaviours are common in children with cystic fibrosis (CF), persist and are often predicted by the mental health of the parent. Routine surveillance for and management of child problem behaviours are recommended.Methods
- Prospective cohort. Setting: Royal Children's Hospital, Monash Medical Centre and Sydney Children's Hospital (Australia) CF clinics.
- Caregivers, of children aged 3–8 years, who completed the baseline questionnaire.
- 102 of 116 (88%) families participated.
- The prevalence of sleep and eating/mealtime problems at follow-up was similar to baseline.
- The prevalence of caregiver mental health symptoms remained higher than the community data.
- 71 out of 102 (70%) of the children experienced at least one persistent behaviour problem.
- Caregiver mental health difficulties predicted persistent child moderate to severe sleep problems (adjusted OR 6.5, 95% CI 1.2 to 36.2, p=0.03) and their persistently poor adherence to the physiotherapy regimen (adjusted OR 3.5, 95% CI 1.3 to 9.2, p=0.01).