Development of the HD-Teen Inventory
Clinical Nursing Research, 05/04/2012
Driessnack M et al. – Adolescents, who have a parent with Huntington Disease (HD), not only are at genetic risk for HD but also are witness to its onset and devastating clinical progression as their parent declines. To date, no mechanism has been developed to direct health care providers to the atypical adolescent experiences of these teens.