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Accommodation needs for carers of and adults with intellectual disability in regional Australia: their hopes for and perceptions of the future
Rural and Remote Health, 09/22/09

Eley DS et al. – This study indicates that there is a lack of suitable, available, supported accommodation for people aged 18 years and older with intellectual disability in this Australian regional centre. Consequently, aging parents caring at home have little choice but to continue in their caring role. For those caring away from home, existing services are decreasingly seen as fitting the ideal life they want for the person with intellectual disability for whom they care. The told experiences, perceptions and views of older carers of and adults with intellectual disability have highlighted their increasing vulnerability to the ?disability system. The findings suggest that government and disability services must acknowledge the changing needs of people with intellectual disability in connection with their advancing age and the urgency of increasing care needs due to the advancing age of their carer/s. The overwhelming feeling is that the carer?s voice will only be heard when the situation reaches crisis point. For many carers and their families this has already occurred.

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