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See Latest ArticlesIntellectual and motor performance, quality of life and psychosocial adjustment in children with cystinosis
Pediatric Nephrology, 03/23/09
Ulmer FF et al. - The patients’ QOL was normal for six of seven dimensions (exception being positive emotions), whereas parents reported significant impairment in positive emotions, autonomy, social and cognitive functions. Significant disturbance was noted in terms of psychosocial adjustment. Intellectual and motor performance, health-related QOL and psychosocial adjustment are significantly impaired in children and adolescents with cystinosis.
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