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See Latest ArticlesMedical and Supportive Care Among People with ALS in the Months Before Death or Tracheostomy
Journal of Pain and Symptom Management, 07/15/09
Albert SM et al. - Patients who opted for LTMV were younger and had higher household incomes. They were significantly more likely to use nasal ventilation, paid home care, and family or personal counseling over follow-up, and they were also more likely to remain on medications. The proactive orientation to health and desire to live despite severe disability reported for people choosing LTMV thus extends as well to more intensive use of medical and supportive care in the months before tracheostomy. A challenging task for clinicians is to acknowledge this strong desire to live while providing appropriate expectations for life after tracheostomy.
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