Case Study: Ethical Guidance for Pediatric e-health Research Using Examples From Pain Research With Adolescents
Journal of Pediatric Psychology, 08/01/2012
Henderson EM et al. – Guidance on optimal ethical practice in e–health research is summarized.Methods
- The first study is an asynchronous message board discussion amongst teenagers with pain who are frequent internet users.
- The second study is a web–based behavioral intervention for the management of adolescent pain.
- Each exemplar study is discussed in the context of specific ethical considerations related to recruitment, informed consent and debriefing, privacy and confidentiality, and participant safety.
- Ethical issues regarding the evaluation of online psychological interventions are also discussed.