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The Impact of the Privacy Rule on Cancer Research: Variations in Attitudes and Application of Regulatory Standards
Journal of Clinical Oncology, 08/26/09

Goss E et al. – ASCO believes that disagreements related to compliance and the resulting delays in certain projects and abandonment of others might be eased by additional institutional training programs and consultation on Privacy Rule issues during study design. ASCO also proposes the development of best practices documents to guide 1) creation of data repositories, 2) disclosure and use of data from such repositories, and 3) the design of survivorship and genetics studies.

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