Health-related Quality of Life in Pediatric Patients With Long-standing Pancreatitis

Journal of Pediatric Gastroenterology and Nutrition, 04/23/2012

Pohl JF et al. – Given the impaired health–related quality of life (HRQOL) and fatigue documented in the present study, future studies are needed to determine whether specific factors can modify HRQOL and fatigue in this patient population.

Methods

  • The authors evaluated HRQOL in children with long-standing pancreatitis using the PedsQL 4.0 Generic Core Scales by patient self-report as well as parent proxy report.
  • Additionally, patient self-reports and parent proxy reports were completed for the PedsQL Multidimensional Fatigue Scale.

Results

  • Across all of the dimensions, significantly impaired HRQOL and higher fatigue were noted for both pediatric patient self-report and parent proxy report in comparison with the matched healthy children samples.
  • Higher fatigue was associated with lower HRQOL. There was moderate to good agreement between patient self-reports and parent proxy reports.

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