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From support to boundary: A qualitative study of the border between self-care and professional care
Patient Education and Counselling, 08/31/09
Kielmann T et al. – Patients were aware of the increasing focus on self–care, but felt that the term was incongruous as it described what they were already doing. While many respondents appreciated increased clinical responsibility some felt ‘abandoned’ by professionals. To be active partners in care, they needed flexible access to trusted healthcare professionals who respected patients’ knowledge about their condition and preferences for management. The shift to self–care needs to be underpinned by a whole system change. Professionals need communication skills to engage with patients as partners in care, working within systems that offer flexible access to supportive care.
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