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Living with a fluctuating illness of ankylosing spondylitis: A qualitative study
Arthritis Care and Research , 10/06/08

Mengshoel AM – By examining the relationships between illness and what people do to recover, 3 different life conditions were found: ordinary life, slowed-down life, and disrupted life. Living with ankylosing spondylitis (AS) requires a continuous but varying process of normalization of symptoms and everyday life within the framework of these 3 illness conditions.

Methods

Aim was to examine the relationship between illness fluctuations and how people with AS adapt to everyday life situations
12 respondents; AS duration of 6 mos-40 yrs participated in qualitative interviews
They were asked to give examples of how they lived their everyday life during good and bad times of illness

Results

3 different types of situations emerged from the analysis:
Ordinary life - managing symptoms by incorporating motion into everyday life routines and adjusting tasks
Slowed-down life - onset of stiffness and fatigue occurred that could be reversed by slowing down ordinary life for a period of time
Disrupted life - respondents unable to cope with everyday life because of inexplicable and unmanageable intense pain

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